Children With Rare Diseases

Children With Rare Diseases 

I Photograph Children With Rare Diseases To Encourage People To Look Beyond Their Condition. I want to break down barriers and allow people to really get to know the person and not just their condition. The project I am working on at the moment specifically looks at rare diseases and is called the Rare Project. Rust Oil Spray

 Matthew is totally in love with football, it’s his passion

He has Crouzon syndrome and has a cochlear implant.

Elisabeth loves to dance and has recently started ballet lessons

 She was born as a twin at a gestation of 23 weeks and 4 days. She weights 1lb 4.5 ounces. After 3 months it was discovered that she had developed hydrocephalus (water on the brain) probably caused by a small brain hemorrhage. Website Design Company pitampura

Tomos dreams of the day he can play football for Manchester United 

He has Spina Bifida.

April is a brave and determined little character, so friendly and quirky, she charms everyone who meets her

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She has Hurlers Syndrome.

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Grace loves everything to do with Disney, especially Mickey

She has sacral agenesis, a heart murmur, pvl and a misplaced spleen.

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Heidi enjoys going to the cinema, eating out, putting the make-up on, having her nails painted and dressing up as Disney princesses. She absolutely adores animals and going on family days out

She has Ehlers Danlos syndrome type 3. It is a collagen disorder that makes her joints to partial sublux (dislocate) and to fully dislocate. She also has low muscle tone which causes her to be very unsteady on her feet, it also causes tiredness severe chronic pain around the joints. EDM Oil

Faith is an affectionate, fun, chatty, loving, warm 14-year-old with a great sense of humour

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She was born with a small deletion on the short arm of chromosome 11 known as WAGR syndrome. This genetic problem caused her to have the condition aniridia amongst other complications, glaucoma, cataracts and nystagmus (wobbly eyes) all forming to give a sight ratio of around 3/60 and recognized medically as severely visually impaired/blind.

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27-Year-Old Muslim Woman Becomes Sweden’s New Education Minister

27-Year-Old Muslim Woman Becomes Sweden’s New Education Minister

Aida Hadzialic was five years old when her family fled from war in Bosnia-Herzegovina. The Swedish politician for the Social Democrats is now the Minister for Upper Secondary School and Adult Education Initiative in Sweden.

A law graduate from the University of Lund, Hadzialic became the deputy mayor of the Swedish city Halmstad at the age of 23. The 27-year-old is now the youngest person ever to serve as a minister in Sweden. SYNERGY

The minister says she became a social democrat because of the Swedish welfare model that gave her family new opportunities to start afresh after they fled from war.

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11 Salary Negotiation Tips That Will Help You Get The Package You

11 Salary Negotiation Tips That Will Help You Get The Package You

Salary negotiation is a tricky game. That’s because your opponent is a smart, shrewd HR manager who will cajole, coax and sweet talk you into accepting that offer letter. Don’t let that happen. Turn the table with these salary negotiation tips and walk away with the hefty package you deserve.

1. Know your worth

Rhonda Byrne’s law of attraction applies here. If you desire a higher salary, ask and you will get it. All you have to do is smartly negotiate and prove your worth. Self-doubt and low confidence will never get you what you want. Therefore, first know what you want and then demand.

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2. Don’t be desperate

Sometimes, most of us get so desperate for a job, that we say yes to any offer immediately. Don’t make that mistake because it will only get you less than you deserve. Take your time, quote your number and wait. Don’t be desperate.

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3. If you want a 30% hike, ask for 40%

That’s because people in HR are a pack of shrewd people who will bring it down to a 27-28%! Therefore, always, always quote higher. And if they aren’t ready to pay you what you want, then just do point no. 4.

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4. Always show a counteroffer from another company

The trick here is to tell the employer that they are not the only option you have. Telling the HR that their competition is eyeing you as well, will increase your value and lead to you eventually cracking the deal. Alternatively if you’re still working, tell them that your current company is ready to give you a raise, better than what these guys are offering. That should definitely crack the deal.

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5. Take your incentives and bonuses into consideration and then demand higher

 

Calculate the incentives and bonuses you got in your previous company, and demand more accordingly. That will be a huge component to increase your CTC.

6. Don’t get aggressive while negotiating. Be logical.

 

Losing your cool here is not going to help. Nor will that ‘I don’t need you’ attitude. You've got to be calm and level headed while speaking to the HR of the desired company. Be logical and prove to them why you’re demanding what you're demanding. Because honestly, they're judging you on how logically you’re negotiating with them. Once they understand your side, there won’t be more cajoling.

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7. Find out how much others in the company are getting paid

 

This can be done if you have a strong network. Hang out with friends who have friends in the desired company. Ask them about the estimated salary packages. That’s how you will gauge the market value of the employer.

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8. Mention all desired components for reimbursements

 

If you don’t want to have a heart attack while checking your payslips, be clear about your salary components and reimbursements. From medical to communication bills, ask the HR for the correct salary breakdown.

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9. Don’t get carried away

 

Which would you pick – a low-paying job from a dream company or a well-deserved pay package from a company that is decent, but not your dream company? Well, if you’re picking the first deal, then you’re definitely underestimating money.

Remember, growth is measured by money today, and getting carried away is foolish.

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10. Don’t be afraid to walk away

               

Sometimes, acting like you don’t need X job also works wonders. Don’t be afraid to turn down the offer and walk away, because this shows that you’re capable of going somewhere else and getting what you want. There are other places that will understand your worth and will ‘make an offer you can’t refuse.’

11. Never negotiate after getting the offer letter

 

Well, that’s just a stupid move because all the talks needed to be done before the offer letter was typed out. If you argue after you get the offer letter, HR is never going to listen. Moreover, this could also lower your chances of getting a higher appraisal in the coming year, as you'd have left a bad impression on your company.

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